Stolte, OttilieCurtis, CateLarkin, Paul Anthony2025-08-262025-08-262024https://hdl.handle.net/10289/17610This thesis investigates the experiences of caregivers of children with bleeding disorders in New Zealand, focusing on the co-design of healthcare services to enhance caregiving outcomes. Bleeding disorders such as haemophilia and von Willebrand’s disease present significant challenges for caregivers, including emotional, financial, and social burdens. Grounded in a Community Psychology framework, this research employs an Experience-Based Co-Design (EBCD) methodology to centre caregivers' lived experiences, enabling the identification of key areas for healthcare service improvement. Drawing on literature concerning chronic illness, relational healthcare, and social determinants of health, the study situates caregiving experiences within a broader socio-cultural and historical context. Particular attention is given to the implications of New Zealand’s Pae Ora (Healthy Futures) Act 2022, which mandates collaborative healthcare design involving consumers and their whānau. Through a participatory process utilising one-on-one experience-based co-design workshops with caregivers, focussing on their experiences of children from 0-2 years of age, and integrating perspectives from healthcare professionals, this study identifies systemic barriers and opportunities for creating more inclusive, supportive healthcare services. The findings highlight the critical role of relational factors in healthcare, the influence of cultural identity on caregiving experiences, and the potential of EBCD approaches to inform policy and practice under the Pae Ora’s co-design requirements. This research underscores the need for culturally competent, relationally-centred care models and offers practical recommendations for enhancing caregiver engagement in healthcare co-design.enAll items in Research Commons are provided for private study and research purposes and are protected by copyright with all rights reserved unless otherwise indicated.Thesis