Show simple item record  

dc.contributor.authorYogarajan, Vithyaen_NZ
dc.contributor.authorMayo, Michaelen_NZ
dc.contributor.authorPfahringer, Bernharden_NZ
dc.date.accessioned2018-11-14T00:13:22Z
dc.date.available2018en_NZ
dc.date.available2018-11-14T00:13:22Z
dc.date.issued2018en_NZ
dc.identifier.citationYogarajan, V., Mayo, M., & Pfahringer, B. (2018). Privacy protection for health information research in New Zealand district health boards. New Zealand Medical Journal, 131(1485), 19–26.en
dc.identifier.issn1175-8716en_NZ
dc.identifier.urihttps://hdl.handle.net/10289/12161
dc.description.abstractAIM: To examine the practices used by New Zealand’s 20 district health boards (DHBs) to protect patient privacy when patient information is used for research, and particularly practices for de-identifying information. METHOD: An e-mailed questionnaire survey, using New Zealand’s Official Information Act to request information on the policies and practices of each DHB. RESULTS: 19/20 DHBs (95%) responded to the survey, one of which reported that it did not provide patient information for research. 18/18 (100%) of the DHBs that reported providing patient information for research required the project to have ethics approval. 18/18 (100%) of the DHBs that offered patient data for research also required individual patient consent and/or de-identification of the information before it was used for research. 14/18 DHBs (78%) deidentified data before releasing it for research, 8/18 DHBs (48%) sought individual patient consent before releasing data for research, and 5/18 (28%) used both methods. Other measures to protect privacy included confidentiality agreements, encryption and cybersecurity procedures. CONCLUSION: Our findings show DHBs self-report that they have su icient measures in place to protect privacy when patient information is used for research. However, these measures need to be continuously evaluated against rapidly evolving international practices and technological developments.
dc.format.mimetypeapplication/pdf
dc.language.isoen
dc.publisherNew Zealand Medical Associationen_NZ
dc.rightsThis article is published in the New Zealand Medical Journal. © NZMA. Used with permission.
dc.subjectcomputer scienceen_NZ
dc.subjectMachine learning
dc.titlePrivacy protection for health information research in New Zealand district health boardsen_NZ
dc.typeJournal Article
dc.relation.isPartOfNew Zealand Medical Journalen_NZ
pubs.begin-page19
pubs.elements-id230169
pubs.end-page26
pubs.issue1485en_NZ
pubs.publication-statusPublisheden_NZ
pubs.volume131en_NZ


Files in this item

This item appears in the following Collection(s)

Show simple item record