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      A review of Automatic end-to-end De-Identification: Is High Accuracy the Only Metric?

      Yogarajan, Vithya; Pfahringer, Bernhard; Mayo, Michael
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      1901.10583.pdf
      Accepted version, 502.9Kb
      DOI
       10.1080/08839514.2020.1718343
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      Yogarajan, V., Pfahringer, B., & Mayo, M. (2020). A review of Automatic end-to-end De-Identification: Is High Accuracy the Only Metric? Applied Artificial Intelligence. https://doi.org/10.1080/08839514.2020.1718343
      Permanent Research Commons link: https://hdl.handle.net/10289/13594
      Abstract
      De-identification of electronic health records (EHR) is a vital step towards advancing health informatics research and maximising the use of available data. It is a two-step process where step one is the identification of protected health information (PHI), and step two is replacing such PHI with surrogates. Despite the recent advances in automatic de-identification of EHR, significant obstacles remain if the abundant health data available are to be used to the full potential. Accuracy in de-identification could be considered a necessary, but not sufficient condition for the use of EHR without individual patient consent. We present here a comprehensive review of the progress to date, both the impressive successes in achieving high accuracy and the significant risks and challenges that remain. To best of our knowledge, this is the first paper to present a complete picture of end-to-end automatic deidentification. We review 18 recently published automatic de-identification systems -designed to de-identify EHR in the form of free text- to show the advancements made in improving the overall accuracy of the system, and in identifying individual PHI. We argue that despite the improvements in accuracy there remain challenges in surrogate generation and replacements of identified PHIs, and the risks posed to patient protection and privacy.
      Date
      2020
      Type
      Journal Article
      Publisher
      Taylor & Francis Inc
      Rights
      This is an author’s accepted version of an article published in the journal: Journal of Applied Artificial Intelligence. © 2020 Taylor & Francis.
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      • Computing and Mathematical Sciences Papers [1454]
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