The embodied and lived experiences of welfare and care for highly impaired, high performance para-sport athletes in Aotearoa New Zealand

Abstract

Aligning with calls in critical disability studies to bring the body and impairment into disability sport, this thesis examines the welfare and care experiences of highly impaired athletes in high-performance sport. While a focus on athlete welfare has gained some international prominence, and a duty of care is increasingly invoked as an organisational and coaching responsibility, these developments remain largely disconnected from disability. The research is centred around two main objectives. First, to amplify the lived and embodied experiences of highly impaired, high performance disabled athletes as they prepare for, train, and compete in sport, and those who support them. Second, to understand how sporting institutions and regulations (within the broader context of government funding and national health care provision) influence welfare and care practices for high performance disabled athletes. Crip methodologies and Indigenous Māori storytelling methodologies such as pūrākau centres lived experience as a site of resistance and knowledge production. Using a reflexive, qualitative approach, including semi-structured interviews, autoethnographic vignettes, and visual ethnography, I expose how impairment effects are managed in ableist sporting environments that valorise normative athlete ideals. I interviewed 11 high-performance paraathletes, seven organisational representatives and two support workers. The research highlights the material, emotional, and temporal labour of care in highperformance sport. Findings are organised around three core themes: the embodied labour of care, impairment effects and interdependence; the tension between crip time, care time, and performance time; the intersecting structural, institutional, and ableist barriers that shape and constrain highly impaired athletes’ participation in disability sport. The first theme shows how high-performance sport privileges autonomous, efficient, and normative bodies, while marginalising those whose messy, gritty embodied impairment effects demand more time, support, and interdependence. The findings bring to the fore biosocial, psycho-emotional costs of navigating care and its impact on athlete welfare. The second theme uncovers how the rhythms of highly impaired bodies disrupt the linear, clockbound time of high-performance sport, revealing the incompatibility between care time and high performance cultures. It highlights the vital yet invisible labour of support workers, ii unacknowledged in contemporary sporting discourse. The third theme addresses the barriers that highly impaired athletes face when navigating ableist institutional and organisational structures. It exposes the complexity of the ableist disability sporting landscape and the gap between duty of care rhetoric and practice. Ultimately, this thesis calls for a radical reimagining of disability sport, one that centres interdependence, affirms bodily difference, and addresses the structural failures that marginalise highly impaired athletes.