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      'Does anyone else have this?' The role of emotion in forum discussions about medical conditions affecting sex characteristics

      Roen, Katrina; Carlquist, Erik; Prøitz, Lin
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      Roen carlquist prøitz 2021 research commons version.pdf
      Accepted version, 1022.Kb
      DOI
       10.1080/13691058.2019.1688867
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      Roen, K., Carlquist, E., & Prøitz, L. (2021). ‘Does anyone else have this?’ The role of emotion in forum discussions about medical conditions affecting sex characteristics. Culture Health & Sexuality, 23(1), 52–67. https://doi.org/10.1080/13691058.2019.1688867
      Permanent Research Commons link: https://hdl.handle.net/10289/14185
      Abstract
      When people experience rare medical conditions or variations, searching online may be the only way to find others with similar experiences. This study examines what happens when people do just that. The dataset for the research has been generated from online posts by people living with variations of sex characteristics, which some call intersex variations. Our analysis focuses on how emotion appears in online posts, how affect becomes embodied in digital contexts, and how norms are negotiated as people relate to one another about the variations that some of them experience. We offer an analysis grounded in digital affect theory to contribute to health research literature. We suggest how health researchers and healthcare providers might develop more nuanced understandings of the emotional realities of people living with variations of sex characteristics.
      Date
      2021
      Type
      Journal Article
      Publisher
      Routledge
      Rights
      This is an Accepted Manuscript of an article published by Taylor & Francis in Culture Health & Sexuality on February 20, 2019, available online: http://www.tandfonline.com/10.1080/13691058.2019.1688867.
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      • Arts and Social Sciences Papers [1403]
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