Mai ngā pouwhirinaki - The experiences of whānau caring for Māori tangata whaiora with traumatic brain injury in the Waikato

Abstract

In Aotearoa today, Māori have a disproportionate experience of Traumatic Brain Injury (TBI) in the community and in prisons compared to non-Māori. Furthermore, Māori have higher mortality rates following TBI, and are more likely to have a prolonged stay in hospital then be discharged without community support services compared with non-Māori. Currently, many of the post-acute rehabilitation services are located in the Auckland region which causes undue pressure of whānau needs, finances, and work commitments for many whānau and individuals with TBI from the Waikato region. My research focuses on the experiences of whānau navigators experience of caring for Māori tangata whaiora with TBI in the Waikato region. Whānau navigators for this thesis refers to members of the whānau who have familial obligations of care. Within this thesis I consult and engage with whānau about post-acute rehabilitation services. This is a qualitative based research project, which draws upon narrative inquiry, and a Kaupapa Māori research paradigm. Documenting these experiences will provide empirical evidence to highlight the invaluable role whānau have within recovery and the value of whānau support. This research can be used to identify the dynamic needs of whānau and encourage the healthcare system to provide a service that is consistent with Kaupapa Māori health frameworks and practices which at present is non- existent. As a result, the project will help inform the development of a service model within TBI that can better reflect and support the needs of whānau and Māori communities, that is a locally derived practice and more applicable and appropriate for Māori. Mauri ora!