Guidance and ethical considerations for undertaking transgender health research and institutional review boards adjudicating this research.

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dc.contributor.authorAdams, Noahen_NZ
dc.contributor.authorPearce, Ruthen_NZ
dc.contributor.authorVeale, Jaimieen_NZ
dc.contributor.authorRadix, Asaen_NZ
dc.contributor.authorCastro, Danielleen_NZ
dc.contributor.authorSarkar, Amritaen_NZ
dc.contributor.authorThom, Kai Chengen_NZ
dc.coverage.spatialUnited Statesen_NZ
dc.date.accessioned2019-08-07T03:17:48Z
dc.date.available2017en_NZ
dc.date.available2019-08-07T03:17:48Z
dc.date.issued2017en_NZ
dc.description.abstractThe purpose of this review is to create a set of provisional criteria for Institutional Review Boards (IRBs) to refer to when assessing the ethical orientation of transgender health research proposals. We began by searching for literature on this topic using databases and the reference lists of key articles, resulting in a preliminary set of criteria. We then collaborated to develop the following nine guidelines: (1) Whenever possible, research should be grounded, from inception to dissemination, in a meaningful collaboration with community stakeholders; (2) language and framing of transgender health research should be non-stigmatizing; (3) research should be disseminated back to the community; (4) the diversity of the transgender and gender diverse (TGGD) community should be accurately reflected and sensitively reflected; (5) informed consent must be meaningful, without coercion or undue influence; (6) the protection of participant confidentiality should be paramount; (7) alternative consent procedures should be considered for TGGD minors; (8) research should align with current professional standards that refute conversion, reorientation, or reparative therapy; and (9) IRBs should guard against the temptation to avoid, limit, or delay research on this subject.en_NZ
dc.format.mimetypeapplication/pdf
dc.identifier.citationAdams, N., Pearce, R., Veale, J., Radix, A., Castro, D., Sarkar, A., & Thom, K. C. (2017). Guidance and ethical considerations for undertaking transgender health research and institutional review boards adjudicating this research. Transgend Health, 2(1), 165–175. https://doi.org/10.1089/trgh.2017.0012en
dc.identifier.doi10.1089/trgh.2017.0012en_NZ
dc.identifier.issn2380-193Xen_NZ
dc.identifier.urihttps://hdl.handle.net/10289/12756
dc.language.isoenen_NZ
dc.relation.isPartOfTransgend Healthen_NZ
dc.rights© Noah Adams et al. 2017; Published by Mary Ann Liebert, Inc. This is an Open Access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
dc.subjectcommunity participationen_NZ
dc.subjectprivacyen_NZ
dc.subjectresearch ethicsen_NZ
dc.subjecttransgenderen_NZ
dc.titleGuidance and ethical considerations for undertaking transgender health research and institutional review boards adjudicating this research.en_NZ
dc.typeJournal Article
pubs.begin-page165
pubs.elements-id215336
pubs.end-page175
pubs.issue1en_NZ
pubs.organisational-group/Waikato
pubs.organisational-group/Waikato/2024 PBRF
pubs.organisational-group/Waikato/DASL
pubs.organisational-group/Waikato/DASL/2024 PBRF - DASL
pubs.organisational-group/Waikato/DASL/SPSY
pubs.organisational-group/Waikato/DASL/SPSY/2024 PBRF - SPSY
pubs.publication-statusPublished onlineen_NZ
pubs.user.infoVeale, Jaimie (jveale@waikato.ac.nz)
pubs.volume2en_NZ
uow.verification.statusverified
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